Friday, August 8, 2014
At our appointment on Monday the cardiologist took a look at Jacob's heart and told us everything looked the same. His heart muscle is still weak and will eventually stop beating. They are not sure how much longer we will have with Jacob. It could be days, weeks, or even months. They said babies surprise them all the time with how long they hold on. They think it will be a gradual decline for Jacob instead of his heart failing instantly. It was a sad reminder that his heart will eventually give up, but we are trying to continue to live in each moment we have with him. It has been really fun to get to do things with Jacob that we never thought we would be able to do. When I was pregnant I was sad that I wouldn't be able to do things with him, just normal everyday things. One day Kevin and Connor were playing out in the front yard and kicking a soccer ball and I just sat on our front porch in our rocking chair and I was so sad that I wouldn't be able to watch them play while rocking Jacob in that chair. Another time I sat in Jacob's room on our glider and rocked for a little bit because I thought that would be the only time I would be able to rock him. Because God is seriously so good, He has graciously allowed me to bring those dreams to life. The other day I sat in the rocking chair on our front porch and watched kevin and Connor play, I literally whispered the word "gift". Today I went into Jacob's room and rocked him on the glider and again whispered "gift". We have taken him on walks in the stroller. Connor has helped give him a bath (he loves washing Jacob's hair). Today I sat down with Connor and played with his castle toy while I held Jacob. We have had the sweetest moments as a family, for that I am beyond thankful. I never thought we would have these moments. Jacob has gotten to meet some of our dearest friends, they have gotten to hold him and love on him. There is something so special about our friends and family getting to hold Jacob, they have prayed and thought about Jacob for such a long time and it is incredible sweet for them to get to hold a product of prayer and God's goodness! Each day we have is a gift, we fall more and more in love with him and get to know him a little better. We realized how much harder it will be to let him go when the time comes, but we would not trade the time we have had with him for anything, no matter how painful it will be. We know and trust The Lord has gone before us and is with us in this. We are loving on Jacob and caring for him with our hands open knowing that he belongs to The Lord. It will not be easy, but knowing Jacob will be in our heavenly Father's care is comforting. Thank for praying! God is so good, in all circumstances we will choose to rejoice!
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